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Tin Soldiers Survey

Tin Soldiers Global is a non-profit organization with a mission to identify, diagnose, and connect people living with Fibrodysplasia Ossificans Progressiva (FOP) and other pediatric musculoskeletal conditions to pathways of care.

 

One way we achieve this is by educating healthcare professionals about FOP and other musculoskeletal conditions.

Aim: To understand referral and care pathways for FOP.

 

This survey consists of seven short questions and will take less than 2 minutes to complete.

Have you ever suspected or diagnosed a patient with FOP?
Yes
No
Would you feel comfortable diagnosing FOP?
Yes
No
Would you feel comfortable managing someone with FOP?
Yes
No
With your available resources, how would you diagnose a case of FOP?
Where would you refer a suspected or diagnosed case of FOP?
Orthopaedics
Genetics
Endocrinology
Stay with Pediatric Rheumatology
Other
Do you have a center with recognized FOP expertise to whom you could refer?
Yes
No
If you had a person you suspected to have FOP please select the types of support in diagnosis and care that you would most likely use/reach out to for support
International Clinical Council for FOP (ICC)
Seek colleague support
Internet
Ifopa
Would you be interested in providing care for those with FOP in your medical practice?
Yes
No

Tin Soldiers Global is a 501(c)3 tax-exempt non-profit organization in the US and a registered section 18A non-profit organisation in South Africa.

​

Donations made in these countries are tax-deductible

to the extent allowed by law.

GET PATIENT SUPPORT:

 

The International FOP Association: 

https://www.ifopa.org

 

Find your closest National patient

support organisation here

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