The International Conference on Children’s Bone Health (ICCBH)
The International Conference on Children’s Bone Health (ICCBH) brings together scientists, clinicians, allied health professionals and...
CONNECT. CARE. CHANGE.
Tin Soldiers is NOT a patient support organisation,
we ARE a patient FINDING organisation.
What this means is that we find people with FOP who are living without a diagnosis, and connect them to care and support. We do this by creating far-reaching awareness, leveraging partner networks and educating healthcare professionals
THE TIN SOLDIERS NETWORK
We are finding new FOP patients every year, thanks to our incredible network of clinicians and partners.
Yes we ARE finding needles in haystacks, all over the world.
At the launch of the Tin Soldiers program in 2020, there were 16 known and connected cases in Africa; 15 of which were in South Africa. As of April 2022, there are 37 known cases in Africa, with the additional 22 cases having been identified or diagnosed either directly through the Tin Soldiers program or by clinicians within
our growing network of FOP-educated professionals.
In India, 3 new cases have been identified through the Tin Soldiers program with another
child diagnosed in Australia.
EVERY 44 HOURS A CHILD WITH FOP IS BORN...
HELP US FIND THEM!
FOR
PATIENTS
Do you have FOP or suspect you have FOP? We can help. Click HERE for expert advice, to consult our checklist, connect with a support group or to connect to other patients with FOP.
FOR
PARENTS
Do you have a child with FOP or suspect your child has FOP? Click HERE for expert advice, to connect with a support group or to contact a doctor in our network.
FOR HEALTHCARE PROFESSIONALS
Do you have a potential FOP patient or want to know more? We can put you in touch with our network of leading experts on FOP and give you access to a world class CME series on FOP
GIVE TODAY TO HELP US MAKE A DIFFERENCE
